The Long-Term Follow-Up (LTFU) Study has resulted in more than 300 publications in scientific journals since it was launched in 1994. Some of these articles are summarized here.

What should high-quality survivorship care look like? In this presentation, Dr. Michelle Mollica of the National Cancer Institute outlines new national standards that aim to ensure every survivor receives comprehensive, evidence-based support after treatment. From care coordination to managing long-term effects, these guidelines offer a roadmap for improving both patient outcomes and research.

Here is a fascinating look at cancer survival rates, innovations for treatment, and access to services around the world.

Survivors of childhood and adolescent cancers—especially those treated for Hodgkin lymphoma—face a significantly higher risk of developing cardiometabolic issues later in life. These include high blood pressure, elevated cholesterol, insulin resistance, and early-onset cardiovascular disease, often tied to past chemotherapy or radiation to the chest.

Here is a great interview hosted by Adrian Pogacian, speaking with Betty Roggenkamp, in “Beyond the Cancer Diagnosis.” Betty is well known for her work in promoting quality cancer care as well as a leading expert in the area of AYA cancer survivors. Adrian is a clinical psychologist who specializes in the psychological impact of a cancer diagnosis, which is now a subspecialty known as “Pscyho-Oncology.” The interview highlights some of the psychological challenges that survivors face – and not just AYA’s!

This is a thought-provoking short video about the challenges that cancer survivors face when they are diagnosed with cancer in another country. Hear from Carmen, an AYA survivor of Hodgkin’s who is from Costa Rica, and April, who is from the Philippines, as they negotiate cancer care in a world that is not their own.

Insurance companies have been in the hot seat lately, for good reason. Both private insurers and Medicare are experiencing piercing scrutiny for their routine and often mind-boggling refusals to reimburse. Read this article if you have any doubt that the system is broken.

According to this new study, “Being uninsured accounts for a significant proportion of racial and ethnic disparities in cancers that are only detected at a later, more life-threatening stage.” This expansive study, led by the American Cancer Society, used data from roughly 1.9 million patients diagnosed between 2013 and 2019. The findings were published in the Journal of the National Cancer Institute.

Men with breast cancer tend to have a worse prognosis than women, as they commonly have more advanced disease at diagnosis. While many practitioners utilize mammography screening for women, there is less awareness of recommendations regarding screening for men.

Meet Sheilagh Foley, a Hodgkin’s survivor with a familiar tale to tell, and she does it so beautifully. Hodgkin’s International was mentioned as a resource, and we are thrilled to have the “shout out!”