News & Events
Voices of Hodgkin’s Blog
Voices of Hodgkin’s Blog
Radiation Fibrosis Syndrome of the Neck Causes Head Drop Syndrome
Neck Solutions –

Here is a comprehensive look at a late effect that many Hodgkin’s survivors suffer from – dropped head syndrome. While we have understood that the primary cause may be radiation fibrosis, there are some studies that point to some chemotherapy agents that could also produce these symptoms.

Cancer Diagnosis Linked to Lower Risk for Dementia Diagnosis
Neurology Advisor –

Cancer diagnoses are associated with a lower risk for subsequent dementia diagnosis, with the relationship strongest for cancers with poor prognoses, underscoring the need to investigate biological and survival-related mechanisms linking cancer and dementia.

Accelerated Aging: The Hidden Toll of Long-Term Cancer Survival
Medscape –

A new article from Medscape examines how many cancer survivors face health challenges similar to “accelerated aging” – including early heart disease, frailty, and other conditions. If you’re a survivor, consider sharing this article with your primary care doctor. It’s a powerful way to help them understand what survivorship really means.

How MSK Nurses Offer Relief From Scanxiety
Memorial Sloan Kettering Cancer Center –

“Scanxiety,” or the fear that accompanies follow-up testing for cancer survivors, is a common and understandable consequence of what we’ve all been through. In this article, nurses at the Memorial Sloan Kettering Cancer Center in NYC offer some of their “tried and true” methods for coping with this. While the focus in this article is largely on breast cancer, the phenomenon of scanxiety does not belong to a single cancer diagnosis. It affects us all.

Understanding Accelerated Aging in Survivors of Childhood Cancers
The ASCO Post –

Childhood cancer survivors face accelerated aging, with studies showing they develop serious health conditions nearly 18 years earlier than the general population. Even without radiation therapy, survivors remain at higher risk for secondary cancers and cardiovascular disease, underscoring the lasting impact of chemotherapy and other treatments. While survival rates have improved and new guidelines, care tools, and therapies are helping, long-term risks persist, making lifelong follow-up and protective strategies essential.

Elevating Voices: You Grow Through What You Go Through
Elephants and Tea –

Hodgkin International’s Rachel Gingold reflects on 36 years of survivorship.

Elevating Voices: Anastasia’s Story
Elephants and Tea –

Young adulthood is full of challenges, but when a cancer diagnosis enters the picture, things get really intense, really fast. Fresh out of undergrad at 24, my life changed overnight when the symptoms I’d been having for nearly a year turned out to be Hodgkin lymphoma – cancer.

Excess Health Risks Linger in Childhood Cancer Survivors Into 50s and Beyond
Medpage Today –

A major new study from the Childhood Cancer Survivor Study shows that AYA (Adolescent and Young Adult) cancer survivors continue to face excess health risks well into their 50s and beyond. Even decades after treatment, conditions like heart disease, frailty, and other chronic illnesses remain more common among survivors than in the general population. This is especially important for Hodgkin lymphoma survivors who were treated as teens or young adults and may not have regular follow-up care today.

Post Traumatic Growth
Coping Magazine –

For many survivors, the cancer experience changes everything. But alongside the fear and grief, it can also bring unexpected growth—stronger relationships, a clearer sense of purpose, and a deeper appreciation for life.

People With Tricuspid Valve Disease Want More Information, Sooner
tctMD –

This article points to the need for better education for those who suffer from tricuspid valve disease. Tricuspid regurgitation (TR) is not uncommon in long-term Hodgkin’s survivors, yet it is one of the late effects that we rarely hear about. There ARE treatments for TR and several trials in the works.