If our conference has inspired you to DO something, there are several ways that you can use your cancer experience and your voice to make a difference.
It was not too long ago that pairing the word cancer with either survivor or veteran seemed like a contradiction in terms. When I was first diagnosed with Hodgkin’s disease (now Hodgkin Lymphoma) 30 years ago, these terms were simply not a part of the cancer vocabulary.
“Last night’s Academy Awards got me thinking…
On Being a Cancer Survivor, “Barbie Style”- America Ferrera’s monologue about womanhood in the movie “Barbie” nailed it for me.
Have you ever felt dismissed or belittled by a healthcare provider? You describe your symptoms, but the response is indifferent, dismissive, or skeptical, leaving you questioning your own experiences.
I titled this article 'The Myth of Survivorship' to highlight the need for active participation in our lives rather than just surviving. I don't see myself as a survivor because it implies a passive role, as though I am a victim of disease and circumstances beyond my control.
Whenever I meet another long-term Hodgkin lymphoma survivor, sooner or later the conversation turns to therapies we have tried in order to improve various conditions plaguing us as a result of late effects.
I titled this article 'The Myth of Survivorship' to highlight the need for active participation in our lives rather than just surviving. I don't see myself as a survivor because it implies a passive role, as though I am a victim of disease and circumstances beyond my control.
Hodgkin’s International–and our online Facebook support groups–has a wealth of information about late effects from treatment for Hodgkin lymphoma. However, managing your anxiety, while learning about late effects can be a challenge.
I had the chance to attend Epic Experience, a life-changing adventure camp for adult cancer survivors, held in the Colorado Rockies, in July 2021. I had applied two years prior, and after submitting an application, medical records, and clearance from my doctor, I received confirmation that I would be attending in July 2020.