One of the most insidious aspects of having cancer is that you often have it before you know it’s there. How crazy is to find out, after the fact, that this potential killer is lurking somewhere inside you, and you had absolutely NO idea? I didn’t.
If our conference has inspired you to DO something, there are several ways that you can use your cancer experience and your voice to make a difference.
It was not too long ago that pairing the word cancer with either survivor or veteran seemed like a contradiction in terms. When I was first diagnosed with Hodgkin’s disease (now Hodgkin Lymphoma) 30 years ago, these terms were simply not a part of the cancer vocabulary.
“Last night’s Academy Awards got me thinking…
On Being a Cancer Survivor, “Barbie Style”- America Ferrera’s monologue about womanhood in the movie “Barbie” nailed it for me.
Have you ever felt dismissed or belittled by a healthcare provider? You describe your symptoms, but the response is indifferent, dismissive, or skeptical, leaving you questioning your own experiences.
I titled this article 'The Myth of Survivorship' to highlight the need for active participation in our lives rather than just surviving. I don't see myself as a survivor because it implies a passive role, as though I am a victim of disease and circumstances beyond my control.
Whenever I meet another long-term Hodgkin lymphoma survivor, sooner or later the conversation turns to therapies we have tried in order to improve various conditions plaguing us as a result of late effects.
I titled this article 'The Myth of Survivorship' to highlight the need for active participation in our lives rather than just surviving. I don't see myself as a survivor because it implies a passive role, as though I am a victim of disease and circumstances beyond my control.
Hodgkin’s International–and our online Facebook support groups–has a wealth of information about late effects from treatment for Hodgkin lymphoma. However, managing your anxiety, while learning about late effects can be a challenge.